Controversial, ME? Whatever could you mean?

Of course, the thing about Chronic Fatigue Syndrome is that it is such a controversial disease. Isn’t it?
I hate starting articles with direct quotes, so that little indirect observation is a very slight paraphrase of something a fellow journalist said to me a few weeks ago.
I just about resisted the temptation to respond by paraphrasing Joe [...]

The sound of two fists clenching

I’ve been having real problems putting stuff in proper perspective.
My reaction to them has been way out of proportion, leading to the odd bout of ranting or introspection.
The curious thing is it has been like a switch going on and off - one minute Mr Ranty, the next Mr Relaxed.
It was most noticeable with a vaguely work-related issue. But [...]

ME/CFS in pictures

It is utterly shameless plug time again.
My wife has been taking part in an online photography self-portrait project since last year - a self-portrait a day for 12 months.
It has been a hell of a challenge for her, but the results are amazing. There’s still a little bit left of the project to go, but [...]

Big bundle of relaxation (almost)

What a difference a week and a few days makes.
It wasn’t so long ago that I was describing my immense feelings of frustration caused by my wife’s illness and the impact it has on her, me and us.
I hoped I’d be able to take Rachel out and enjoy some winter sunshine and just over a [...]

Big ball of frustration

I’ve been a bit tetchy lately.
My usual laidback, calmness personified state of being has not always been in evidence as I’ve grappled with what I can only describe as “Aaaaaarrrrrrrrrrrrggggghhhhhhhh!”
I don’t think I’ve been as bad as the angry folk the acerbic Charlie Brooker identifies, but it is safe to say that frustration has loomed large on [...]